U.S. Apologizes For Guatemala STD experiments

MSNBC– U.S. government medical researchers intentionally infected hundreds of people in Guatemala, including institutionalized mental patients, with gonorrhea and syphilis without their knowledge or permission more than 60 years ago.

Many of those infected were encouraged to pass the infection onto others as part of the study. About one third of those who were infected never got adequate treatment.

On Friday, Secretary of State Hillary Clinton and Health and Human Services Secretary Kathleen Sebelius offered extensive apologies for actions taken by the U.S. Public Health Service.

“The sexually transmitted disease inoculation study conducted from 1946-1948 in Guatemala was clearly unethical,” according to the joint statement from Clinton and Sebelius. “Although these events occurred more than 64 years ago, we are outraged that such reprehensible research could have occurred under the guise of public health. We deeply regret that it happened, and we apologize to all the individuals who were affected by such abhorrent research practices.”

Secretary Clinton called Guatemalan president Alvara Cabellaros Thursday night to reaffirm the importance of the U.S. relationship with the Latin American country. President Barack Obama called Cabellaros Friday afternoon, according to a statement from White House press secretary Robert Gibbs.

“The people of Guatemala are our close friends and neighbors in the Americas,” the government statement says. “As we move forward to better understand this appalling event, we reaffirm the importance of our relationship with Guatemala, and our respect for the Guatemalan people, as well as our commitment to the highest standards of ethics in medical research.”

During a conference call Friday with National Institutes of Health Director Francis Collins and Assistant Secretary of State Arturo Valenzuela, officials noted that there were no formalized regulations regarding protection of human studies during the 1940s.

In addition to the apology, the U.S. is setting up commissions to ensure that human medical research conducted around the globe meets “rigorous ethical standards.” U.S. officials are also launching investigations to uncover exactly what happened during the experiments.

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© COPYRIGHT MSNBC, 2010

Biometric ID for India’s 1.2 Billion People

TRUTHOUT– Fears about loss of privacy are being voiced as India gears up to launch an ambitious scheme to biometrically identify and number each of its 1.2 billion inhabitants.

In September, officials from the Unique Identification Authority of India (UIDAI), armed with fingerprinting machines, iris scanners and cameras hooked to laptops, will fan out across the towns and villages of southern Andhra Pradesh state in the first phase of the project whose aim is to give every Indian a lifelong Unique ID (UID) number.

“The UID is soft infrastructure, much like mobile telephony, important to connect individuals to the broader economy,” explains Nandan Nilekani, chairman of the UIDAI and listed in 2009 by Time magazine as among the world’s 100 most influential people.

Nilekani is a co-founder of the influential National Association of Software and Services Companies and, before this assignment, chief of Infosys Technologies, flagship of India’s information technology (IT) sector.

According to Nilekani, the UID will most benefit India’s poor who, because they lack identity documentation, are ignored by service providers.

“The UID number, with its ‘anytime, anywhere’ biometric authentication, addresses the problem of trust,” argues Nilekani.

But a group of prominent civil society organisations are running a Campaign For No-UID, explaining that it is a “deeply undemocratic and expensive exercise” that is “fraught with unforeseen consequences.”

Participants in the campaign include well-known human rights organisations such as the Alternative Law Forum, Citizen Action Forum, People’s Union for Civil Liberties, Indian Social Action Forum, and the Centre for Internet and Society.

A meeting was organised by the campaigners in New Delhi on Aug. 25 where speakers ridiculed the idea of a 12-digit number, and said it is unlikely to rectify, for example, the massive corruption in the public distribution system that is supposed to provide food to poor families.

J.T. D’Souza, an IT expert, asserted at the meeting that the use of biometrics on such a massive scale has never been attempted before and is bound to be riddled with costly glitches.

Other speakers raised issues of security and the possibility of hackers getting at databases and passing on information to commercial outfits, intelligence agencies or even criminal gangs.

In talks and television interviews, Nilekani has maintained that the benefits of the UID project far outweigh its risks. “It’s worth taking on the project and trying to mitigate the risks so that we get the outcomes we want,” he told the CNN-IBN television channel in an interview.

But the possibility of religious profiling by state governments or misuse by caste lobbies is real. This is because the central government has decided to include caste as a category in the UID questionnaire to be filled out by applicants.

Because identity is already a potent issue and the trigger for frequent identity-related conflict – such as the 2002 anti-Muslim riots in Gujarat that left 2,000 people dead – any exercise that enhances identification is fraught.

Usha Ramanathan, a prominent legal expert who is attached to the Centre for the Study of Developing Societies in the national capital, does not buy the UIDAI’s assurances.

At the Aug. 25 meeting, Ramanthan said that while enrolling with the UIDAI may be voluntary, other agencies and service providers might require a UID number in order to transact business. Indeed, the UIDAI has already signed agreements with banks, state governments and hospital chains which will allow them to ask customers for UIDs.

Ramanathan said that, taken to its logical limit, the UID project will make it impossible, in a couple of years, for an ordinary citizen to undertake a simple task such as travelling within the country without a UID number.

The UIDAI will work with the National Population Register (NPR) which draws its powers from the Citizenship Rules of 2003 and provides for penalties if information is withheld.

And as a government website says: “Certain information collected under the NPR will be published in the local areas for public scrutiny and invitation of objections.” Seeking to allay privacy fears, the website goes on to explain that this is merely “in the nature of the electoral roll or the telephone directory.”

But things begin to look ominous when seen in the context of the National Intelligence Grid (NATGRID), the setting up of which home minister P. Chidambaram announced in February as part of his response to a major terrorist attack.

Chidambaram said NATGRID would tap into 21 sets of databases that will be networked to achieve “quick, seamless and secure access to desired information for intelligence and enforcement agencies.”

He added that NATGRID will “identify those who must be watched, investigated, disabled and neutralised.”

“Internationally only a few countries have provided national ID cards because of the unsettled debate on privacy and civil liberties,” says Prof. R. Ramakumar at the Tata Institute of Social Sciences in Mumbai. He added that several countries have had to withdraw ID card schemes or drop biometric aspects because of public opposition.

Nilekani maintains that the main purpose of the UID project is to empower the vast numbers of excluded Indians. “For the poor this is a huge benefit because they have no identities, no birth certificates, degree certificates, driver’s licences, passports or even addresses.” 

By Ranjit Devraj

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This work by Truthout is licensed under a Creative Commons Attribution-Noncommercial 3.0 United States License.

Photo by Tom Thai

Netherlands Closed Prisons for Lack of Criminals

NRC– The Dutch justice ministry has announced it will close eight prisons and cut 1,200 jobs in the prison system. A decline in crime has left many cells empty.

During the 1990s the Netherlands faced a shortage of prison cells, but a decline in crime has since led to overcapacity in the prison system. The country now has capacity for 14,000 prisoners but only 12,000 detainees.

Deputy justice minister Nebahat Albayrak announced on Tuesday that eight prisons will be closed, resulting in the loss of 1,200 jobs. Natural redundancy and other measures should prevent any forced lay-offs, the minister said.

The overcapacity is a result of the declining crime rate, which the ministry’s research department expects to continue for some time.

Belgian prisoners

Some reprieve might come from a deal with Belgium, which is facing overpopulation in its prisons. The two countries are working out an agreement to house Belgian prisoners in Dutch prisons. Some five-hundred Belgian prisoners could be transferred to the Tilburg prison by 2010.

The Netherlands would get 30 million euros in the deal, and it will allow the closing of the prisons in Rotterdam and Veenhuizen to be postponed until 2012.

© COPYRIGHT NRC, 2010

Photo by flickr user Mocvdleung

The City That Ended Hunger

YES!– “To search for solutions to hunger means to act within the principle that the status of acitizen surpasses that of a mere consumer.” -CITY OF BELO HORIZONTE, BRAZIL

In writing Diet for a Small Planet, I learned one simple truth: Hunger is not caused by a scarcity of food but a scarcity of democracy. But that realization was only the beginning, for then I had to ask: What does a democracy look like that enables citizens to have a real voice in securing life’s essentials? Does it exist anywhere? Is it possible or a pipe dream? With hunger on the rise here in the United States—one in 10 of us is now turning to food stamps—these questions take on new urgency.

To begin to conceive of the possibility of a culture of empowered citizens making democracy work for them, real-life stories help—not models to adopt wholesale, but examples that capture key lessons. For me, the story of Brazil’s fourth largest city, Belo Horizonte, is a rich trove of such lessons. Belo, a city of 2.5 million people, once had 11 percent of its population living in absolute poverty, and almost 20 percent of its children going hungry. Then in 1993, a newly elected administration declared food a right of citizenship. The officials said, in effect: If you are too poor to buy food in the market—you are no less a citizen. I am still accountable to you.

The new mayor, Patrus Ananias—now leader of the federal anti-hunger effort—began by creating a city agency, which included assembling a 20-member council of citizen, labor, business, and church representatives to advise in the design and implementation of a new food system. The city already involved regular citizens directly in allocating municipal resources—the “participatory budgeting” that started in the 1970s and has since spread across Brazil. During the first six years of Belo’s food-as-a-right policy, perhaps in response to the new emphasis on food security, the number of citizens engaging in the city’s participatory budgeting process doubled to more than 31,000.

The city agency developed dozens of innovations to assure everyone the right to food, especially by weaving together the interests of farmers and consumers. It offered local family farmers dozens of choice spots of public space on which to sell to urban consumers, essentially redistributing retailer mark-ups on produce—which often reached 100 percent—to consumers and the farmers. Farmers’ profits grew, since there was no wholesaler taking a cut. And poor people got access to fresh, healthy food.

When my daughter Anna and I visited Belo Horizonte to write Hope’s Edge we approached one of these stands. A farmer in a cheerful green smock, emblazoned with “Direct from the Countryside,” grinned as she told us, “I am able to support three children from my five acres now. Since I got this contract with the city, I’ve even been able to buy a truck.”

The improved prospects of these Belo farmers were remarkable considering that, as these programs were getting underway, farmers in the country as a whole saw their incomes drop by almost half.

In addition to the farmer-run stands, the city makes good food available by offering entrepreneurs the opportunity to bid on the right to use well-trafficked plots of city land for “ABC” markets, from the Portuguese acronym for “food at low prices.” Today there are 34 such markets where the city determines a set price—about two-thirds of the market price—of about twenty healthy items, mostly from in-state farmers and chosen by store-owners. Everything else they can sell at the market price.

“For ABC sellers with the best spots, there’s another obligation attached to being able to use the city land,” a former manager within this city agency, Adriana Aranha, explained. “Every weekend they have to drive produce-laden trucks to the poor neighborhoods outside of the city center, so everyone can get good produce.”

Another product of food-as-a-right thinking is three large, airy “People’s Restaurants” (Restaurante Popular), plus a few smaller venues, that daily serve 12,000 or more people using mostly locally grown food for the equivalent of less than 50 cents a meal. When Anna and I ate in one, we saw hundreds of diners—grandparents and newborns, young couples, clusters of men, mothers with toddlers. Some were in well-worn street clothes, others in uniform, still others in business suits.

“I’ve been coming here every day for five years and have gained six kilos,” beamed one elderly, energetic man in faded khakis.

“It’s silly to pay more somewhere else for lower quality food,” an athletic-looking young man in a military police uniform told us. “I’ve been eating here every day for two years. It’s a good way to save money to buy a house so I can get married,” he said with a smile.

No one has to prove they’re poor to eat in a People’s Restaurant, although about 85 percent of the diners are. The mixed clientele erases stigma and allows “food with dignity,” say those involved.

Belo’s food security initiatives also include extensive community and school gardens as well as nutrition classes. Plus, money the federal government contributes toward school lunches, once spent on processed, corporate food, now buys whole food mostly from local growers.

“We’re fighting the concept that the state is a terrible, incompetent administrator,” Adriana explained. “We’re showing that the state doesn’t have to provide everything, it can facilitate. It can create channels for people to find solutions themselves.”

For instance, the city, in partnership with a local university, is working to “keep the market honest in part simply by providing information,” Adriana told us. They survey the price of 45 basic foods and household items at dozens of supermarkets, then post the results at bus stops, online, on television and radio, and in newspapers so people know where the cheapest prices are.

The shift in frame to food as a right also led the Belo hunger-fighters to look for novel solutions. In one successful experiment, egg shells, manioc leaves, and other material normally thrown away were ground and mixed into flour for school kids’ daily bread. This enriched food also goes to nursery school children, who receive three meals a day courtesy of the city.
The result of these and other related innovations?

In just a decade Belo Horizonte cut its infant death rate—widely used as evidence of hunger—by more than half, and today these initiatives benefit almost 40 percent of the city’s 2.5 million population. One six-month period in 1999 saw infant malnutrition in a sample group reduced by 50 percent. And between 1993 and 2002 Belo Horizonte was the only locality in which consumption of fruits and vegetables went up.

The cost of these efforts?

Around $10 million annually, or less than 2 percent of the city budget. That’s about a penny a day per Belo resident.

Behind this dramatic, life-saving change is what Adriana calls a “new social mentality”—the realization that “everyone in our city benefits if all of us have access to good food, so—like health care or education—quality food for all is a public good.”

The Belo experience shows that a right to food does not necessarily mean more public handouts (although in emergencies, of course, it does.) It can mean redefining the “free” in “free market” as the freedom of all to participate. It can mean, as in Belo, building citizen-government partnerships driven by values of inclusion and mutual respect.

And when imagining food as a right of citizenship, please note: No change in human nature is required! Through most of human evolution—except for the last few thousand of roughly 200,000 years—Homo sapiens lived in societies where pervasive sharing of food was the norm. As food sharers, “especially among unrelated individuals,” humans are unique, writes Michael Gurven, an authority on hunter-gatherer food transfers. Except in times of extreme privation, when some eat, all eat.

Before leaving Belo, Anna and I had time to reflect a bit with Adriana. We wondered whether she realized that her city may be one of the few in the world taking this approach—food as a right of membership in the human family. So I asked, “When you began, did you realize how important what you are doing was? How much difference it might make? How rare it is in the entire world?”

Listening to her long response in Portuguese without understanding, I tried to be patient. But when her eyes moistened, I nudged our interpreter. I wanted to know what had touched her emotions.

“I knew we had so much hunger in the world,” Adriana said. “But what is so upsetting, what I didn’t know when I started this, is it’s so easy. It’s so easy to end it.”

Adriana’s words have stayed with me. They will forever. They hold perhaps Belo’s greatest lesson: that it is easy to end hunger if we are willing to break free of limiting frames and to see with new eyes—if we trust our hard-wired fellow feeling and act, no longer as mere voters or protesters, for or against government, but as problem-solving partners with government accountable to us.

 

Frances Moore Lappé wrote this article as part of Food for Everyone, the Spring 2009 issue of YES! Magazine. Frances is the author of many books including Diet for a Small Planet and Get a Grip, co-founder of Food First and the Small Planet Institute, and a YES! contributing editor.

The author thanks Dr. M. Jahi Chappell for his contribution to the article.


(photo by alicia roldan)